Welcome to IKYHDF  Homepage!

 

       Welcome and thank you for visiting our new Imana k Youth Huntington's Disease Foundation Internet site.  We are glad to give you the opportunity to stay in touch with our foundation and our efforts.

        At this point we can provide you with information regarding our purpose and goals. The emphasis of our site is to bring awareness and education of Youth Huntington's disease. This topic is certainly of interest to you. Huntington's disease, also called Huntington's chorea, chorea major, or HD, is a neurological disorder characterized by abnormal body movements called chorea and a lack of coordination; it also affects a number of mental abilities and some aspects of behavior. Development of Huntington’s disease is highly dependent on how many times CAG is repeated. Usually, DNA bases—Cytosine-Adenine-Guanine (CAG)— repeats multiple times. CAG is repeated between 7 and 35 times; more than this, however, will cause the disease. Global incidence varies, from 3 to 7 per 100,000 people of Western European descent, down to 1 per 1,000,000 of African and Asian descent. All excerpts From Wikipedia.

         In the meantime you can reach us at 1-972-492-6948. We are looking forward to hearing from you. You can also contact us at our e-mail address: INFO@imanakfoundation.org

         If you are not familiar with our foundation and your first contact with us is online: We would be pleased to hear from you! Please let us know what your needs and questions are, we will be more than happy to help.

As a national recording artist formally of Malaco Record's groups, The Truthettes and the Friends,   I had the opportunity to see many things and meet many people.  After recording 5 releases I ventured out on my own.  In April 2008, I released an inspirational CD entitled, “He Did It For Me ".  At the time I knew it had purpose, but what, I did not know.   Because of the way it came about coming at a time when I was in the middle of a 1 ½ year struggle to find out what was ailing my child.   As a parent you are broken when you see your child having difficulty doing even the simplest task.  It wasn’t until a year later May 2008, just after the release that I found out Imana, age 7 had youth HD.   After 2 ½ years, my true struggle had just begun and my mission found me.  I knew little about this disorder, as did many others.  We were inspired to found the Imana K Youth Huntington's Disease Foundation and to give all the proceeds from the sale of the new release "He Did It For Me” to support funding awareness campaigns, family education programs and research.  This is “Why I Kan“. Money and fame does not shield you from life. 

         In brief, you should know the following about us: our foundation was established in 2009 and was created to provide awareness and education of the crippling effects of Huntington's Disease in youth . Our business is located at 4253 Hunt Dr  Suite # 1107  Carrollton, Texas  75010.

And everyone who helped in granting Imana's wish to go to Disney World.   She and our family will never forget it.