Imana     


      BIO:

      Current Age : 8

      Onset of HD Symptoms:  Age 4

       Challenge : 2 1\2 yrs of Misdiagnosis'

       Test Date for HD : April 25, 2008

       Results Date : May 22, 2008
     
      CAG (Cytosine-Adenine-Guanine) Count :  126

     (CAG repeats between 7 and 35 times with is considered normal) 

     Confirmed Onset Date for Epilepsy  : September 18, 2008

         My Story : Mommy said I was 4 when I started. I had to go to alot of doctors who didn't believe this could happen to me. Mommy said she tried for a longtime to get them to help me, she said they made a mistake. Finally she found a doctor who saw the way I moved and walked and he tested me. He said I had HD from my first dad who now has it.        

Here's to my mommy and daddy. A song for loving me..because their will Please click to Buy it!

        Also on itunes.com.    

"All the proceed from this song and CD will be donated to IKYHDF"

     Mommy said!    I am a blessing wrapped in sunshine.

     My Daddy said!  I'm smart, pretty and a diva!

Hi, I'm Kaleb and Imana is my big sister.  And I help her put on her seatbelt.

How do you help?