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| " Uncovering hope to extend the lives of our youth" |
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How it began...
Because of the 2 1/2 years of struggles to find out what was ailing Imana. We felt it was purposeful for us to help save other children and their families from endure what we have faced in this fight. As a parent you are broken when you see your child having difficulty doing even the simplest task. In May 2008, Imana was diagnosed age 7 with youth HD. After the devastation of this news and the 2 1/2 years of not knowing, our truest struggle had only begun trying to save our child... We knew little about this disorder, as did many others. Being determined to save our child we were inspired to found the Imana K Youth Huntington's Disease Foundation to give voice to this neglected, crippling and debilitating disease which doctors have no cure. "Gayla, I then decided to donate all the net proceeds from the sale of the new studio released CD "He Did It For Me” to support funding awareness campaigns, family education programs and research. This project was released in April 2008 just weeks before the diagnosis was given. This is“Why i Kan“. " Money and fame does not shield you from life. |
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Why iKan..
From the Founder
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| Mission Statement and Vision....... | ||||||
| To enrich the lives of youth and their families affected by neurological disorders. By furthering awareness, primarily Huntington's disease, initiating and driving funding programs to support testing for early detection and research. The ultimate goal is to help find a cure. | ||||||
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